Дайте шанс на Рори за самостоятелно бъдеще! / Help Give Rori a Chance at an Independent Future!

Rori is the most caring, brilliant, and fiercely independent kid - truly every mother's dream. Behind the sweet six-year-old girl with huge curly hair and bright eyes, there is a true hero who has been fighting for her life since the first breath she took. Her arrival into the world coincided with one of the biggest holidays - Christmas. In the early morning hours of December 25th, after an emergency C-section, the doctors told me that Rori only had a 50% chance of survival as she had been without oxygen for at least 4 minutes after her birth. My prayers were answered and my baby girl survived! When leaving the NICU, I was told to expect delayed motor development and very weak muscles, but miraculously - no cognitive impairment. She was eventually diagnosed with ataxic cerebral palsy. Three and a half years later, she had her first and very severe seizure and received another diagnosis - epilepsy. The medication prescribed for her epilepsy by doctors in Bulgaria was accompanied by nightmarish side effects - lack of appetite and energy, constant nausea, trembling hands, impaired balance and falls, and frequent seizures. All the specialists claimed that she was on the best medication for her diagnosis, but my maternal instinct screamed that something was wrong. Luckily, we were able to find two of the best doctors in Turkey in the field of neurology and orthopedics in June of 2022. They completely changed Rori's treatment and since then she has not had a single seizure, has great appetite and lots of energy. A huge improvement in balance, endurance, and body posture is also noticeable. The cost of her annual treatment comes out to BGN 82,112 (approximately $45,000). The amount includes visits to a neurologist, medications, consultations with an orthopedist, physical therapy, orthotic braces, and the accomodations in Istanbul. In the absence of financial support from her father, the funds required for her treatment are beyond my means and after a year of doing this alone my savings are depleted! I am faced with one of the biggest challenges as a mother – knowing that there is a way to help my child, but not having the resources to do so. That is why I am turning to you with hope! Please give us a hand, give Rori a hand! Only with your help will she have a chance to lead an independent life and deal with the daily challenges she has faced since birth!