Hi dear people.I am Annie Zakarian the mother of Avedis Nikolov who has epilepsy and West syndrome.

He was born by cesarean section, but didn't have enough oxygen. Until the fourth month everything was normal,but he started to bleach his eyes,and immediately on the 8th of March we were admitted by professor Letvienko in Sofia,there we lived 15 days in which he was treated with injections.

After they discharged him after a while,he started having many seizures at once. With great fear and much love we wanted to cope with these seizures.We had to go to Plovdiv to Professor Ivanov for treatment.We were treated for 15 days at a time in the clinic of child neurology.After discharge after a month we were there again.

Professor Burak Tatli had come to Sofia to examine children with such diseases. They did an EEG and we found out that he had gone from West syndrome to another .Now my child has started to go into autism and Professor Tatl recommended exosome stem cell therapy .the amount we have to raise is prohibitive for us.